Abstract
Preimplantation genetic diagnosis is a reproductive procedure that involves testing embryos conceived by in vitro fertilization for genetic conditions, including cystic fibrosis, Duchenne’s muscular dystrophy, and controversially deafness. This paper examines the ethical dilemma surrounding parents using this technology to select for and choose to implant an embryo that carries the genetic markers for deafness. Disability and impairment are discussed, followed by an in-depth analysis of the role of Deaf culture, including the perspective of hearing children of deaf adults. The effect of deafness on life opportunities is then viewed through the lens of the child’s right to an open future. Next, the lack of regulations surrounding preimplantation genetic diagnosis in the United States is compared to the regulations of other countries. The paper concludes with an examination of the inequities the deaf population face in the healthcare system of the United States. Ultimately, this paper seeks to argue that parents should not be allowed to choose to implant an embryo that carries the genetic markers for deafness. Future research should focus on the opinions of the deaf community on the use of preimplantation genetic diagnosis for this purpose, as well as the societal consequences of denying implantation of embryos that carry the genetic markers for this disability.
