Health-Related Independence and Quality of Life of Youth with Bowel and/or Bladder Dysfunction Attending a One-Week Residential Program

Document Type

Article

Publication Date

3-2012

Department

Educational Leadership and School Counseling

Abstract

In order to foster effective transitions to adulthood, it is necessary for youths with chronic healthcare conditions to have access to training and support. When the condition is one that is rare and potentially stigmatizing such as incontinence, these opportunities can be difficult to find locally. Camps and special weekends have been used to provide training and support to youth with various rare chronic conditions. However, the impact of these programs has not often been measured within the context of facilitation of health-related independence or quality of life issues. A study of the impact of a one-week residential program on 89 youth with bowel and/or bladder dysfunction was conducted to determine if significant, lasting change was effected in these areas. While no statistically significant impact was found on the larger constructs, the health-related independence domain of Knowledge of Your Condition and the quality of life domain of Self were significantly impacted and was sustained 2-4 months after the program. Implications for programs for this and other populations with chronic illness are discussed.

Publication Title

Physical Disabilities: Education and Related Services

Volume

30

Issue

1

First Page

41

Last Page

59

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